Explore the resource links in the book
Alzheimer’s: The Uncertain Journey

(and many more useful links….)

Welcome! Explore our comprehensive collection of links and resources curated to complement the content of our book. This collection includes all the links featured in the book, providing you with a wealth of information, practical tools, and supportive communities to enhance your caregiving journey. Whether you’re seeking in-depth information, practical tools, or connections with others facing similar challenges, you’ll find valuable resources here to support you every step of the way.

Alzheimer’s The Uncertain Journey - book cover

Alzheimer’s: The Uncertain Journey

About Alzheimer’s Disease

Alzheimer’s Association: https://www.alz.org

Alzheimer’s Foundation of America: https://www.alzfdn.org

Alzheimer’s Disease International: https://www.alz.co.uk

National Institute on Aging Alzheimer’s Disease Education and Referral (ADEAR) Center: https://www.nia.nih.gov/alzheimers

National Institute of Neurological Disorders and Stroke: https://www.ninds.nih.gov/Disorders/All-Disorders

Alzheimer’s Disease Information Page, Medline Plus: Alzheimer’s disease https://www.nlm.nih.gov/medlineplus/alzheimersdisease.html

The Alzheimer’s Project: https://www.hbo.com/documentaries/the-alzheimers-project-caregivers

Resources for Caregivers

National Alliance for Caregivers: https://www.caregiving.org

Family Caregiver Alliance: https://www.caregiver.org

Today’s Caregiver: https://www.caregiver.com

Caregiving.com: https://www.caregiving.com

Caring Connections: https://www.caringinfo.org

Conversation Starter Guide: https://theconversationproject.org

Nursing Homes

Joint Commission on the Accreditation of Health Care Organizations (JCACHO), Gold Seal Health Care Organizations: https://www.qualitycheck.org (searchable)

Nursing Home Compare (Medicare): https://www.medicare.gov/care-compare/


Hospice Foundation of America, Alzheimer’s Disease and Hospice Care: https://www.hospicefoundation.org/hicalzheimers/

National Hospice and Palliative Care Organization: https://www.nhpco.org


Alzheimer’s Drug Discovery Foundation: https://www.alzdiscovery.org

Bright Focus Foundation (formerly the American Health Assistance Foundation): https://www.brightfocus.org

National Institute on Aging, Clinical Trials Search: https://www.nia.nih.gov/alzheimers/clinical-trials

Fisher Center for Alzheimer’s Research Foundation: https://www.alzinfo.org

Online Support Communities

Caring Bridge: https://www.caringbridge.org

Care Pages: https://www.carepage.com

Care Zone: https://carezone.com

Lotsa Helping Hands. https://caringconnections.lotsahelpinghands.com/eldercare/home/

Government Resources

Social Security Administration “Bluebook” of disabilities: https://www.ssa.gov/disability/professionals/bluebook/

Benefits finder: https://www.benefits.gov

Disability services finder: https://www.usa.gov/disability-services

Area Agencies on Aging: https://www.n4a.org

Veterans Administration Office of Geriatrics and Extended Care: https://www.va.gov/geriatrics/

Financial Assistance

See Chapter 12 for a detailed discussion of various sources of financial help. The two primary sources of financial assistance for people with Alzheimer’s disease are Medicare and Medicaid.

Medicare: https://www.cms.gov/Medicare/Medicare-General-Information/MedicareGenInfo/

Medicaid: https://www.medicaid.gov

Legal Services

Elderlaw: https://www.elderlawanswers.com

AARP: https://www.aarp.org

Justice in Aging: https://www.justiceinaging.org

National Guardianship Association: https://www.guardianship.org

State and Local Bar Associations:

Nolo Network: https://www.nolo.com

National Academy of Elderlaw Attorneys: https://www.naela.org

National Senior Citizens Law Center: https://nsclcarchives.org

Music, Art and Montessori

I’m Still Here Foundation: https://www.imstillhere.org

Memories in the Making: https://www.alz.org/wi/helping-you/early-stage-programs/memories-in-the-making/

Music and Memory: https://musicandmemory.org

Relax, Motivate, Appreciate: A Montessori Resource: https://www.dementia.org.au/sites/default/files/AlzheimersAustralia_Montessori_Resource_WEB(1).pdf

Pets and Alzheimer’s

A dog must be certified by and registered with one of the following organizations to be eligible to receive the AKC Therapy Dog title:

Alliance of Therapy Dogs (formerly Therapy Dogs, Inc.): https://www.therapydogs.com

Therapy Dogs International: https://tdi-dog.org

United States Dog Registry: https://usdogregistry.org

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