Explore the resource links in the book
Alzheimer’s: The Uncertain Journey
(and many more useful links….)
Welcome! Explore our comprehensive collection of links and resources curated to complement the content of our book. This collection includes all the links featured in the book, providing you with a wealth of information, practical tools, and supportive communities to enhance your caregiving journey. Whether you’re seeking in-depth information, practical tools, or connections with others facing similar challenges, you’ll find valuable resources here to support you every step of the way.
Alzheimer’s: The Uncertain Journey
About Alzheimer’s Disease
Alzheimer’s Association: https://www.alz.org
Alzheimer’s Foundation of America: https://www.alzfdn.org
Alzheimer’s Disease International: https://www.alz.co.uk
National Institute on Aging Alzheimer’s Disease Education and Referral (ADEAR) Center: https://www.nia.nih.gov/alzheimers
National Institute of Neurological Disorders and Stroke: https://www.ninds.nih.gov/Disorders/All-Disorders
Alzheimer’s Disease Information Page, Medline Plus: Alzheimer’s disease https://www.nlm.nih.gov/medlineplus/alzheimersdisease.html
The Alzheimer’s Project: https://www.hbo.com/documentaries/the-alzheimers-project-caregivers
Resources for Caregivers
National Alliance for Caregivers: https://www.caregiving.org
Family Caregiver Alliance: https://www.caregiver.org
Today’s Caregiver: https://www.caregiver.com
Caregiving.com: https://www.caregiving.com
Caring Connections: https://www.caringinfo.org
Conversation Starter Guide: https://theconversationproject.org
Nursing Homes
Joint Commission on the Accreditation of Health Care Organizations (JCACHO), Gold Seal Health Care Organizations: https://www.qualitycheck.org (searchable)
Nursing Home Compare (Medicare): https://www.medicare.gov/care-compare/
Hospice
Hospice Foundation of America, Alzheimer’s Disease and Hospice Care: https://www.hospicefoundation.org/hicalzheimers/
National Hospice and Palliative Care Organization: https://www.nhpco.org
Research
Alzheimer’s Drug Discovery Foundation: https://www.alzdiscovery.org
Bright Focus Foundation (formerly the American Health Assistance Foundation): https://www.brightfocus.org
National Institute on Aging, Clinical Trials Search: https://www.nia.nih.gov/alzheimers/clinical-trials
Fisher Center for Alzheimer’s Research Foundation: https://www.alzinfo.org
Online Support Communities
Caring Bridge: https://www.caringbridge.org
Care Pages: https://www.carepage.com
Care Zone: https://carezone.com
Lotsa Helping Hands. https://caringconnections.lotsahelpinghands.com/eldercare/home/
Government Resources
Social Security Administration “Bluebook” of disabilities: https://www.ssa.gov/disability/professionals/bluebook/
Benefits finder: https://www.benefits.gov
Disability services finder: https://www.usa.gov/disability-services
Area Agencies on Aging: https://www.n4a.org
Veterans Administration Office of Geriatrics and Extended Care: https://www.va.gov/geriatrics/
Financial Assistance
See Chapter 12 for a detailed discussion of various sources of financial help. The two primary sources of financial assistance for people with Alzheimer’s disease are Medicare and Medicaid.
Medicare: https://www.cms.gov/Medicare/Medicare-General-Information/MedicareGenInfo/
Medicaid: https://www.medicaid.gov
Legal Services
Elderlaw: https://www.elderlawanswers.com
AARP: https://www.aarp.org
Justice in Aging: https://www.justiceinaging.org
National Guardianship Association: https://www.guardianship.org
State and Local Bar Associations:
Nolo Network: https://www.nolo.com
National Academy of Elderlaw Attorneys: https://www.naela.org
National Senior Citizens Law Center: https://nsclcarchives.org
Music, Art and Montessori
I’m Still Here Foundation: https://www.imstillhere.org
Memories in the Making: https://www.alz.org/wi/helping-you/early-stage-programs/memories-in-the-making/
Music and Memory: https://musicandmemory.org
Relax, Motivate, Appreciate: A Montessori Resource: https://www.dementia.org.au/sites/default/files/AlzheimersAustralia_Montessori_Resource_WEB(1).pdf
Pets and Alzheimer’s
A dog must be certified by and registered with one of the following organizations to be eligible to receive the AKC Therapy Dog title:
Alliance of Therapy Dogs (formerly Therapy Dogs, Inc.): https://www.therapydogs.com
Therapy Dogs International: https://tdi-dog.org
United States Dog Registry: https://usdogregistry.org
Tools and Gadgets
Tile App https://www.thetileapp.com
Scooper Plate https://www.caregiverproducts.com/blue-scooper-plate.html
Ergonomic Cutlery https://www.arthritissupplies.com/evo-ot-ware-utensil-set
Spill Proof Cup https://www.exmed.net/providence-kennedy-cup-spill-proof-cup
Zip Grip https://www.thewrightstuff.com/zip-grips-zipper-rings-6-pack.html
Sock Aid https://www.caregiverproducts.com/etac-socky-stocking-aid-short.html
Button Hook Tool https://www.rehab-store.com/p-north-coast-medical-good-grips-button-hook.html
Lock Laces https://www.arthritissupplies.com/lock-laces.html
Ice Cleats https://www.icetraxusa.com
Transfer Belt https://professionalmedicalcorp.com/products/assure-fleece-lined-xfer-belt-large
Reacher Grabber https://www.northerntool.com/shop/tools/product_200426370_200426370
Large Digital Clock https://www.marathonwatch.com/collections/clocks
Personal Emergency Response System https://senioralertmedical.com/
Medications
Pill dispenser https://www.alzstore.com/electronic-pill-dispenser-p/0032.htm