Emphysema

Emphysema Additional Sources Of Information

Here are some reliable sources that can provide more information on emphysema.

Emphysema Foundation for Our Right to Survive (EFFORTS) 
http://www.emphysema.net/

EFFORTS is a non-profit organization, formed, funded and operated by patients with the disease. Their mission is to promote deeper research for more effective treatment and, hopefully, a cure for emphysema and related lung diseases. The group offers a wealth of information on their website, an active mailing and support list, and links to ongoing studies.

National Emphysema Foundation 
http://emphysemafoundation.org/

NEF is a non-profit organization that focuses on research, education and patient care. Its website includes articles on pulmonary disease and new treatments. A section of the site is devoted to keeping the lungs healthy.

Lung Association 
Phone: (800) 586-4872
http://www.lungusa.org

These are the offices and website for American Lung Association. They offer information on emphysema and many other lung-related diseases.

Heart, Lung & Blood Institute Information Center 
Phone: (301) 251-1222
http://www.nhlbi.nih.gov/index.htm

This division of the U.S. government’s National Institutes of Health deals with lung diseases. In addition to offering many pamphlets and books on bronchitis, this organization is a good resource for new treatments and medications under review.

The American Academy of Family Physicians 
http://familydoctor.org/

The professional association for the family practice doctors in the U.S. The AAFP offers a good selection of consumer brochures on lung diseases, many of which are available on their website.

American Association for Respiratory Care 
Phone: (972) 243-2272,
http://www.aarc.org/

The American Association for Respiratory Care is the national professional association for respiratory therapists and others interested in lung disease. The purpose of the AARC is to provide education to its members on clinical and professional topics and to advance the art and science of respiratory care. It offers many consumer resources including a series of “Check Your IQ” tests.

National Jewish Medical and Research Center 
Phone: 303/388-4461
Phone: 800/222-LUNG (5864)
http://www.njc.org

This is one of the major hospitals and research centers in the U.S. that concentrates mainly on lung and similar diseases. Brochures and other information are available on the website and through the phone hotline.