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Parkinson's Disease

Where To Get Further Help

Wednesday, January 21, 2015 - 15:18

Contributing Author: Guy Slowik FRCS

Here are some reliable sources that can provide more information on Parkinson's disease.

Living with Parkinson's disease does not have to be a lonely marathon, and there are ample connections and resources for those with Parkinson's disease who have special needs. All are dedicated to action and advocacy that help meet those needs and provide a strong, informed voice in public policy decision making while empowering those with Parkinson's disease to make changes in their lives and the lives of others with the disease.

Persons with PD and their families are encouraged to become educated and informed about the disease and related treatments and scientific research.

A number of Parkinson's disease organizations, associations, and support groups are located throughout the country, all of which can benefit persons with Parkinson's disease in their quest for a better quality of life. Check these out:

The National Institute of Neurological Disorders and Stroke (NINDS) is a segment of the National Institutes of Health (NIH) and is the foremost Federal sponsor of research involving brain and nervous system disorders. The Institute also subsidizes a public information program about Parkinson's disease diagnosis, treatment, and research:

National Institutes of Health (NIH) Neurological Institute 
Phone: 800-352-9424
Phone: 301-496-5751
http://www.ninds.nih.gov

Following are private organizations providing information for persons with Parkinson's disease and families about Parkinson's diagnosis, treatment, and services. Some associations fund research, sponsor support groups, conferences, and information and referral centers. Many publish newsletters and educational materials; others support research, clinical services, and physical, occupational, speech and psychological therapies. Some groups serve in areas of lobbying, activism, and advocacy, while others sponsor press conferences and public policy forums, maintain libraries, and sponsor speakers' bureaus:

American Parkinson Disease Association 
Phone: 800-223-2732 East Coast 
Email: apda@apdaparkinson.org East Coast 
Phone: 800-908-2732 West Coast
Email: apdawc@earthlink.net West Coast 
http://www.apdaparkinson.com/

National Parkinson Foundation 
Phone: 800-327-4545
Phone: 800-433-7022 In Florida 
Phone: 305-547-6666
http://www.parkinson.org

Parkinson's Action Network This is now the Michael J. Fox Foundation 
Phone: 800-850-4726
Phone: 707-544-1994
Email: info@parkinsonsaction.org 
http://www.parkinsonsaction.org

Parkinson's Disease Foundation 
Phone: 800-457-6676
Phone: 212-923-4700
Email: info@pdf.org 
http://www.pdf.org"

Parkinson Support Groups of America 
Phone: 301-937-1545

The Parkinson Society of Canada 
Phone: 1800 565 3000 Toll Free (in Canada) 
Phone: 1 416 227 9700
Fax: 1 416 227 9600
http://www.parkinson.ca

Parkinson's Disease Society of the United Kingdom 
Phone: 020 7931 8080
Email: enquiries@parkinsons.org.uk 
http://www.parkinsons.org.uk/

Additional Sources Of Information

Agencies and numbers

  • American Occupational Therapy Association (AOTA)

    301-652-2682

  • American Physical Therapy Association (APTA)

    800-999-2782

  • American Massage Therapy Association (AMTA)

    847-864-0123

More Web Sites For Persons With Parkinson's Disease And Their Caregivers

Videos

  • Living with Parkinson's disease: A 12-Part Series

    Available to Parkinson's disease Support Groups Nationwide

    1-800-327-4545

  • The Educated Caregiver and The Comfort of Home

    LifeView Resources

    800-395-5433

  • The Parkinson Education Team

    From the Young-Onset & Care Partner Support Group

    303-830-1839

  • Tai Chi for Seniors

    909-943-2021.

  • Gentle Fitness

    800-566-7780

  • Sit and Be Fit (Special edition for Parkinson's disease)

    509-448-9438

Parkinson's Medical Alert Card

A Parkinson's Medical Alert card notifies emergency personnel and/or others offering assistance and provides contact numbers for family and physicians. The card also provides important medical information. To request a card, call 800-327-4545.

Parkinson's Disease